Mother (Teka) and daughter (Chloe) are both undergoing treatment for the same type of tumors. I have had the privilege of getting to know them both over the past several years through Grey Matters Fund.
Teka continues to bring awareness each day to the brain tumor population through her positive outlook on life while battling a meningioma.
The following is a post made by Teka…
Today is the first day of May! I Go Grey in May for Brain Tumor Awareness. Chloe and I have Grade II Atypical Meniginoma Brain Tumors with a genetic mutation called SMARCE1 they located at the brainnstem. I get many questions about these tumors. No they are not cancerous but grow like cancer and are constantly in the process of mutation. The location effects our livelihood and daily functions. For every surgery we have had or may have we know the chances of something being effected are present. We have been very blessed that most of the issues have been temporary.
The SMARCE1 trait only has been studied in 90 individuals world wide so we are 2 of 90 meaning little is known. What i know is its a predisposition to have these tumors bc of an error in the dna strand.
#meninginomamama #motherofasurvior #Chloesjourney #braintumorssuck #warrior #masskicker
Our annual walk will be held on October 8th at Jordan Valley Park.
Activities for this year include
- Food Trucks
- Games for Kids
- Live Music
- Walk to honor our friends and family
- More to come
- Local Vendors
Are you a Vendor interested in our event? Check out our Vendor Invite
We are honored for yet another chance to tell our story through the media.
In case you missed the live show here is a link to the KOLR 10 Grey Matters feature
Click here for Video
I recommend asking providers for copies of your medical records. I keep a binder at my house with all of my CT scans, and MRI images. In that binder, I also have my medical records from physicians…
Usually there is a small fee for a medical records request, this fee pays for photocopying and postage. The fee is well worth it though to have copies of your records on file in case you have questions or concerns for future appointments and providers.
Our long time supporter John Worcester [Jonh E. Fyv] along with Everything Kitchens have teamed up to raffle this awesome Kitchen Aid mixer for our cause.
One lucky $5 ticket will win this custom hand painted mixer. Raffle tickets can be purchased here. The winning ticket will be drawn Aug 15th during Everything Kitchens 13th Anniversary Celebration.
This is my friend Rachel. We met in the winter of 2015. I knew her mother, Elizabeth because Elizabeth was my nurse when I was receiving radiation treatment through Hulston Cancer Center.
When Elizabeth reached out to Grey Matters Fund to see if we could provide support to Rachel , I jumped at the opportunity. I began spending time with Rachel during her Physical and Occupational therapy sessions at Ozarks Neuro Rehabilitation.
Our time together quickly turned into a friendship. Rachel has a kind heart, and she is a lover of nature. She is soft spoken, but very deliberate with her kind words. We have laughed together and shared tears together. I am honored to call Rachel my friend.
– Michael Harris
Learn more about Rachel